UNESCO-IBE is inviting you to join the webinar on "Improving inclusion of children living with a rare disease through curriculum transformation", co-organised with the Agrenska Foundation and Rare Diseases International and taking place on 28 November 2022 2:00-4:00 PM - Geneva time - (UTC+1).
Panelists:
H. E. Irène Esambo Diata - Minister Delegate to the Minister of Social Affairs, in charge of people living with a disability and other vulnerable people, DRC
Yao Ydo - Director, UNESCO-IBE
Anders Olauson - Founder and Chairman of Agrenska Foundation
Flaminia Macchia - Executive Director of Rare Diseases International (RDI)
Gunilla Jaeger - Psychologist, Ågrenska Foundation
Renato Opertti – Senior Expert, UNESCO-IBE
Carlos David Peña Aragon - Head of Social Networks, Federación Mexicana de Enfermedades Raras (FEMEXER), lives Gaucher disease (Mexico)
Eda Selebatso - Founder of Botswana Organization For Rare Diseases (BORDIS) - Mother of two children living with different rare diseases (Botswana)
Mark Rogers - Parent of a young adult living with DiGeorge Syndrome (New Zealand)
Nikita Van Dijk - University student and patient advocate living with Ehlers-Danlos syndrome (New Zealand)
Robin Yoon - M.D. Candidate, Georgetown University School of Medicine (USA)
Sook Yee Yap and Jaden Lim - We Care, Journey - mother and son, Jaden lives with Growth Hormone Deficiency and Pituitary Microadenoma (15), and his brother lives with SMA Type One (Malaysia)
